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Patient Engagement in Primary Health Care Research
Needs Assessment Survey

We are developing a training program focused on patient engagement in primary health care research. We have developed this survey to gather information that will help us create the program. Please answer the following questions. Please be as specific as possible. Thank you!

What is Patient Engagement in Research/Patient-Oriented Research?

The Strategy for Patient-Oriented Research (SPOR) defines patient-oriented research as a continuum of research that engages patients as partners, focuses on patient-identified priorities, and improves patient outcomes. Patient Oriented Research is conducted by multidisciplinary teams where the goal is to apply the best evidence from all stakeholders to build a high quality and effective healthcare system.

Examples of how patients can contribute in research include:

· Setting research priorities Member of research committee Data analysis

· Sharing patient perspectives/stories Identifying outcomes Collaborator/data collector

· Accessing patient participants Disseminating research findings

We are interested in patient-oriented research in primary health care. “Primary health care is the first contact and continuing care of individuals and families by primary medical care providers (i.e. family physicians) and interdisciplinary primary care by a team as well as health promotion with groups of patients.” Health Canada (2011)

Please select the stakeholder group that best describes you:

1) Would you be interested in participating in a Patient-Oriented Research training program to gain more knowledge and information about what Patient-Oriented Research is and how you could be involved?

Yes
No
Please let us know the reasons why you answered yes or no:

2) What knowledge and information would you like us to provide to assist you in participating in Patient-Oriented Research?

3) Which of the following topics do you think are the most important for a training program in Patient-Oriented Research to include? Please rank the following topics from 1-6, with 1 being most important (click and drag to move).

1 Basics of POR (methods, skills, definitions)
2 Roles on research teams
3 How to ensure patient values & perspectives are included
4 Time & resources required to conduct POR research
5 Evaluation/measures of impact of POR
6 Examples of POR & learning by doing
7 Other Topics:

4) Have you ever participated in or used Patient-Oriented Research?

Yes
No
If Yes, please describe the details of this experience:

5) Please share any additional thoughts you have that might assist us in developing this Patient-Oriented Research training program.

Thank you!